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Benefit concert for 2 children stricken by life-threatening diseases

- Event organised by Church of God of Prophecy in Long Look scheduled for Sunday May 7, 2017
Kaidija Martin, left, and J’Nae Lily-Ann Nibbs, right, will be the beneficiaries of the benefit concert by the Church of God of Prophecy Community Worship Centre in Long Look on May 7, 2017. Photo: Provided
Kaidija Martin, 14, suffers from Lupus, a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Photo: VINO/File
Kaidija Martin, 14, suffers from Lupus, a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Photo: VINO/File
The full flyer for the benefit concert by the Church of God of Prophecy Community Worship Centre in Long Look on May 7, 2017. Photo: Provided
The full flyer for the benefit concert by the Church of God of Prophecy Community Worship Centre in Long Look on May 7, 2017. Photo: Provided
ROAD TOWN, Tortola, VI- While prayers are powerful, the members of the Church of God of Prophecy Community Worship Centre in Long Look, on the main island of Tortola, are not stopping there as they are moving to stage a benefit concert for two children affected by life-threatening diseases.

The beneficiaries of the concert at the church in Long Look from 4:00 PM on May 7, 2017 are 14 year old Kaidija Martin, who suffers from Lupus and 9 month old J’Nae Lily-Ann Nibbs, who is afflicted with Pompe Disease.

The benefit concert will see selections from Levor & CWC Praise Team, Papa Daz, Prophecy N’ Praise, Gabrielle Denae, Delma Perez and others.

“We are hoping to raise as much as we can for each child,” said Secretary of the Women’s League at the Church of God of Prophecy Community Worship Centre- Long Look, Cheryl Small.

Small added that there will also be donation sheets and a food sale at the benefit concert to help raise funds.

The entry fee to the concert is $10.00 for adults and $5.00 for children.

The money raised will go towards medical expenses for both children.

What is Lupus?

According to the Mayo Clinic, Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs.

Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

While there's no cure for lupus, treatments can help control symptoms.

What is Pompe Disease?

Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally.

Researchers have described three types of Pompe disease, which differ in severity and the age at which they appear. These types are known as classic infantile-onset, non-classic infantile-onset, and late-onset.

The classic form of infantile-onset Pompe disease begins within a few months of birth. Infants with this disorder typically experience muscle weakness (myopathy), poor muscle tone (hypotonia), an enlarged liver (hepatomegaly), and heart defects. Affected infants may also fail to gain weight and grow at the expected rate (failure to thrive) and have breathing problems. If untreated, this form of Pompe disease leads to death from heart failure in the first year of life.

18 Responses to “Benefit concert for 2 children stricken by life-threatening diseases”

  • usa (26/04/2017, 19:52) Like (15) Dislike (1) Reply
    where can I give I am overseas
  • Donate (26/04/2017, 20:10) Like (15) Dislike (0) Reply

    Can you please provide contact details to donate if a person is unable to attend the concert.

    Thank you
  • Share on Facebook (26/04/2017, 21:11) Like (8) Dislike (0) Reply
    Please share on Facebook BVI Community Board and have it pinned to the top of father page
  • J'Nae mom (26/04/2017, 21:49) Like (11) Dislike (3) Reply
    https://www.gofundme.com/treatment-for-jnae-nibbs
    • @ J'Nae mom (26/04/2017, 22:50) Like (4) Dislike (0) Reply
      thanks
    • Kim (27/04/2017, 08:32) Like (3) Dislike (0) Reply
      Thank may God keep you and the family strong just what the movie on this disease and did some research on it never knew it in the BVI will donate to both kids
  • Donation (26/04/2017, 22:07) Like (1) Dislike (0) Reply
    For persons who would like to donate please see link below. It will be greatly appreciated whether big or small. Thank you very much.

    https://www.gofundme.com/treatment-for-jnae-nibbs?pc=fm_co_dashboard_a
  • Coconut oil (26/04/2017, 22:09) Like (6) Dislike (0) Reply
    Can they see if using cold pressed coconut oil will help the child with Pompe Disease
  • COGOP (26/04/2017, 23:49) Like (4) Dislike (0) Reply
    Contributions may be mailed to Community Worship Centre, Church of God of Prophecy, P.O. Box 976, Road Town, Tortola VG1110 Indicate the purpose "Benefit Fund" in the memo section of the cheque. Thank you.
  • what a thing (27/04/2017, 09:26) Like (1) Dislike (24) Reply
    why we have to fork up the money? why cant the government give a donation to the parents of these precious child to help cover their medical expenses. after all they re wheel barrowing millions for their personal gratification.
  • J'Nae mom (27/04/2017, 11:33) Like (4) Dislike (0) Reply
    @what a thing. If I really respond to your comment. Nobody said you have to. So keep your smart remarks to yourself if you don't know what to say. Thanks
  • Donation or not (27/04/2017, 11:43) Like (5) Dislike (0) Reply
    Listen we ain't wan no negativity under here...we ask you to donate if you can donate then ok fine but we didn't ask about government or any of that....sometimes it's best to keep what yu think to yuhself and jus keep it stepping...the kids need the help... we neva say it a mandatory to give we asked n it's ur choice...if you have a heart you'll help..thanks in advance
  • Fam (27/04/2017, 21:42) Like (0) Dislike (1) Reply
    I give last month but i am touch my this article so i will give again...VINO is also a blessed news site LONG LIVE VINO
  • stay strong (28/04/2017, 08:26) Like (1) Dislike (0) Reply
    This is heart braking. I wish I could adopt one of these children so my insurance could help. I know how much the medical bills can cost. As I am a cancer survivor and saw the bills, but did not have to pay much. But since I can't I will donate on the face book page. These two children are in my Prayers.
  • Hopechennai (31/10/2017, 08:04) Like (0) Dislike (0) Reply
    Thanks For Sharing........

    Donate to child in need


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